The Good: I spoke to Dr. F this morning and he was very sympathetic and apologetic. I guess the Optometrist shared more with him than she did with us, and while I felt she was in left field, she wasn't. He talked about my options and recommended I do the IV steroids for 3 days. I agreed and thanked him for listening and taking such good care of me. He also told me that he received the reports from Maine and was really surprised by them.
The Bad: Despite all my anxiety and trying to get immediate treatment, I can't start the IV infusion until next week. It needs to be done on 3 consecutive days (outpatient) and the clinic is only open Monday through Friday. I'm set for Monday at 11:30 am. I think I'll make it until then, but I am nervous. My vision is much worse than I thought. I was out today running a few errands and it was really difficult. My depth perception is gone and everything I see is weird and shadowy. I really wish I could have started the treatment today, but I can't, so I'm just going to chill at home for the next few days.
The Ugly: There were spots on my MRI in 2005. There were only 2, but they were noted on the report. But no one said anything. No one thought it meant anything. They write in their reports that I already had numbness, tingling, and pain, plus these 2 spots, but they all decided that it wouldn't change or spread. I'm so angry. If I'd known about it, I would have done a follow up 6 months later. I would have continued to pursue it. But I was told that nothing was there and that I'd be fine. But I'm not. I now have 10 spots, I walk with a cane, I randomly piss myself, and now I can't see. I am currently gathering all the reports and films (I have the 2005 MRI right next to me), I'm going to give it to the radiologist who read my most recent MRI and see what he says. And then I'm consulting an attorney. (If you know an attorney, especially one that does free consultations, please forward that info to me.)
Due to my current situation, I need some help:
Until my eye resolves, I need a little help getting around. I don't know the times of the Tuesday and Wednesday infusions, but I will need help getting there and back. They are taking place at Herrick on Dwight in Berkeley and the entire procedure should take an hour. I don't necessarily need someone with a car, just someone who can ride the bus with me, make sure I get the right stop, and walk me back to my apartment. If you are interested in helping out, please comment below, email me, or send me a message on Facebook. I already checked with the infusion folks and they said that it's fine to bring a friend to keep me calm throughout the procedure. It doesn't need to be the same person each day and if you have some time to give on Tuesday or Wednesday and would like to be "on call," please let me know with the times that you are available.