tag:blogger.com,1999:blog-5268028218653242429.post5605780128720404273..comments2022-12-19T22:38:14.481-08:00Comments on Chris: My Journey with MS: Gilenya experiences wanted!Christinahttp://www.blogger.com/profile/11250206902283833251noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-5268028218653242429.post-31806658080698153142013-03-06T11:16:42.928-08:002013-03-06T11:16:42.928-08:00My husband is going to start Gilenya next week. He...My husband is going to start Gilenya next week. He had an eye exam to get the pressure in his eyes before he started Gilenya. Did you have your eyes checked before starting Gilenya. I hope you feel better.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5268028218653242429.post-60749507424609504052013-01-03T11:58:36.427-08:002013-01-03T11:58:36.427-08:00Hi,
I have been taking Gilenya for about 4 months ...Hi,<br />I have been taking Gilenya for about 4 months now. My first dose got my pulse down to 52 beats a minute. So I was out with no problems 6 hours later. I guess the Gilenya is working like the doctors want, from my perspective I cannot tell anything, but my Physical Therapist wanted me to ask my doctor if the drug was affecting my stamia. She thought not. I do like the administration of the drug as it is easy and painless comparing to my time with Copaxone.<br />Good Luck on your journey.<br />StacyChef Blackhttps://www.blogger.com/profile/07134623218911195144noreply@blogger.comtag:blogger.com,1999:blog-5268028218653242429.post-42106872492394788982012-04-08T21:29:13.821-07:002012-04-08T21:29:13.821-07:00Hello again..
after 4 long months my eyes are stil...Hello again..<br />after 4 long months my eyes are still painful, red and lots of pressure. I am so tired of this and it seems like it is taking forever to fix itself.<br />The doctor told me that the medication is out of my system it just takes time for the damage of the medication to repair itself. <br />This is getting ridiculous. I really don't know how much longer I can stand this.<br />Sometimes I just wish I never tried Gilenya.<br />Good luck if you are going to try this.<br />Sueazcharlihttps://www.blogger.com/profile/05364430246421799223noreply@blogger.comtag:blogger.com,1999:blog-5268028218653242429.post-9071039677920148102012-01-28T05:30:13.814-08:002012-01-28T05:30:13.814-08:00Well... I have now been in the hospital for 3 days...Well... I have now been in the hospital for 3 days now. They put me on solu-medrol. The redness in my eyes is almost gone but my Neuro told me that he thinks it was the gilenya and has had at least one patient going to the ER every week because of severe eye pain and redness... OMG, I knew it. I am hoping and praying that the pain will go away and my vision will return to normal. Good luck and if it is working for you stick with it.<br />God bless.<br />Sueazcharlihttps://www.blogger.com/profile/05364430246421799223noreply@blogger.comtag:blogger.com,1999:blog-5268028218653242429.post-44996097187118141312012-01-25T14:58:25.225-08:002012-01-25T14:58:25.225-08:00Hi again..
I am now 2 months from the 1 dose of t...Hi again.. <br />I am now 2 months from the 1 dose of that wonder drug called Gilenya.<br />I have been back to the ER 2 more times and I am getting ready to give up. This pain is TERRIBLE!<br />My eyes STILL look like they are bleeding.<br />Every doctor I see tells me to see another doctor and the previous doctors tell me to not see the doctors they recommend but to see their doctors. I am on this terrible ride and I want OFF!!<br />I just got off of the phone with my Neuro and they are now frantically trying to get me to the ophthalmologist they want me to see. OMG!! Someone make up your mind and help me.<br />Well off to the hospital again for some awesome numbing eye drops and pain meds.. God how I wish I could use those drops every day.<br />Thank you so much for all of your help.<br />Wish me luck and good luck to you.<br />I will keep you posted.azcharlihttps://www.blogger.com/profile/05364430246421799223noreply@blogger.com