tag:blogger.com,1999:blog-5268028218653242429.post8316866359101235374..comments2022-12-19T22:38:14.481-08:00Comments on Chris: My Journey with MS: Gilenya: Day 00Christinahttp://www.blogger.com/profile/11250206902283833251noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-5268028218653242429.post-4451552468648576522011-12-30T22:29:25.415-08:002011-12-30T22:29:25.415-08:00Hi Sue, thank you for your comment. I just created...Hi Sue, thank you for your comment. I just created a post just for you. I hope this helps!Christinahttps://www.blogger.com/profile/11250206902283833251noreply@blogger.comtag:blogger.com,1999:blog-5268028218653242429.post-51030769737282858722011-12-30T02:48:42.322-08:002011-12-30T02:48:42.322-08:00Any information would be great.
Thanks again,
SueAny information would be great.<br />Thanks again,<br />Sueazcharlihttps://www.blogger.com/profile/05364430246421799223noreply@blogger.comtag:blogger.com,1999:blog-5268028218653242429.post-76822280449293338722011-12-30T02:47:40.528-08:002011-12-30T02:47:40.528-08:00I started Gelenya on December 19th. The very first...I started Gelenya on December 19th. The very first 6 hour observation ended with me waking up in the ER with a heart rate of 34. The hospital wanted to keep me overnight for observation. As luck would have it my heart rate went up to 57 just in time for the nurse to tell the doctor and get me discharged. As soon as he saw it I unplugged the monitor and I was out of there.<br />My heart rate is still in the 40's and 50's. <br />Anyway 2 days later I had to go back to the ER with blood red eyes and terrible eye pain, oh and the horrible headaches. Not 1 person including my Neurologists assitant have ever heard of Gelenya. Needless to say they had to call poison control to find out about it.<br />I have been back twice with severe eye pain and headaches. The hospital told me it has nothing to do with Gelenya and sent me home. I just got back again tonight with the same thing. Severe eye pain when i look to one side or another which in turn makes my head pound. Once again they say it has nothing to with the drug. Bull... I have had MS for 17 years and have never had this before. I am curious to see how many others are in my situation. Honestly, I would rather be blind than go through one more day of pain and suffering. <br />Signed, Scared in Arizona.azcharlihttps://www.blogger.com/profile/05364430246421799223noreply@blogger.com